Emma was born with her Twin Brother Oliver at 23 weeks 1 day. Oliver passed away after one day. This is our family's story of loss, hope and joy!
Thursday, April 10, 2014
Emma and her Kidneys
When Emma was released from the NICU she had a little history of high blood pressure. This is hard to put much stock in because it is really difficult to get an accurate blood pressure reading on a baby. They did a kidney ultrasound just to make sure that was all good and found bright spots in her kidneys that are calcium deposits. This can be caused by the many things they gave her to stay alive having been born so stinkin' early. They diagnosed her with "Nephrocalcinosis: Nephrocalcinosis is a disorder in which there is too much calcium deposited in the kidneys. This condition is common in premature babies." She did follow-up every three months for a while post discharge, and then the last 3 visits have been every 6mo. The last ultrasound was torturous! Emma screamed the whole time, then we had to do blood work. That took two ladies and me holding her but they got it on the first time. Unfortunately the results from the ultrasound took longer than normal so the appointment with the Nephrologist was really pointless. He was new so I told him all about Emma's history and he said he would call me with the results. He called a couple of days later to tell me that there are still a few bright spots and he wants to see us again in 6mo.
Two days ago we went in to do the ultrasound and blood work (I learned my lesson from the last time, and scheduled them on a different day than the appointment).
I was better prepared this time for the ultrasound:
Emma's Blankie-Check
Emma's Binkie-Check(it was a special treat, she usually only gets it in her crib).
I swaddled her legs, threw my knee over them and held both of her arms and gave her the binkie. She actually calmed down after the first minute and was fine as long as the tech didn't look at her or talk to her. He was great!! Then we had to do the blood work. The lady tried to do it with just me holding her but couldn't get it to work. After digging around for what seemed like forever she called for help. I had to swaddle her to put a warm compress on the other arm while we waited for help to arrive. The three of us were able to hold her still enough and they got it on that try. She was so mad! But she still told both ladies "Thank You!" and waved good-bye! She is so polite! They wanted a urine sample too, but she did not cooperate.
Today's visit went like this: Emma's Nephrology appointment was short and sweet! She started crying as soon as they called her name. We both had to get weighed so we could get a weight on her and then they wanted her blood pressure. Thankfully Emma let me put the cuff on and the three of us (the nurse, the NP and Me) were able to distract her long enough to get a BP! It was good, but I didn't get the numbers. They went over her history (again), then gave me the results of her kidneys ultrasound: Her kindeys are Perfect! That's right folks! NO MORE BRIGHT SPOTS!! Growing perfect and all that jazz too! Blood work was PERFECT also!
Yet, they want to see her again (for labs, ultrasound and BP) around her birthday....and then follow-up yearly from there. I guess I was overly optimistic about getting this particular specialist crossed off our list. They want to keep an eye on her because she was a micro-preemie and had the umbilical line in right after she was born (in her belly button). They will watch to make sure she does not develop hypertension and her kidneys continue to grow and function normally.
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