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Updates on Emma and Oliver

Born 1/11/12

5:00am 
1lb 4oz 11.5in
and 
6:05am 
1lb 3oz 11in

First time on the monitors this pregnancy, hoping they don't put me on bedrest already!· 1/10/12 at 10:40am via mobile

Looks like I get to stay the night at the hospital tonight, hope my babies stay put!· 1/10/12 at 3:55pm via mobile

Hoping the turb helps!· 1/10/12 at 4:07pm via mobile

Going to think good thoughts and try to relax, hoping there will be no more bleeding tonight!· 1/10/12 at 9:08pm via mobile 

Couldn't stop the contractions, Oliver born 5:00am vaginally. Emma born 6:05am c-section both in NICU but they are fighters!· 1/11/12 at 7:13am via mobile

                                       Oliver Daniel Blake

                                                 Emma Claire Blake

Melissa Pace Please send your prayers and positive thoughts toward my family. My sister, Daree Blake delivered twins at just 23 weeks this morning. Oliver and Emma are 1 lb 4oz & 3oz. They are beautiful babes and are so strong. The Pace's always seem to have something exciting going on, I guess you can't say we are a boring bunch! I just wish I could be there for you Dar. I love you. · 1/11/12at 11:24pm

Thank you everyone! It means so much to me to have so much love and support during this scary time! I love you all and I am hoping I will have nothing but good news to report!· 1/11/12 at 11:17am via mobile

Thank you every one who have been praying for our babies. Oliver developed major hemorrhage in his brain this morning, so he passed away peacefully in my arms at 9am. Emma is still stable. · 1/12/12 at 2:02pm via mobile

Today has been a long day, already. Emma has remained stable with good blood gasses. She is a wiggle worm and a little sassy too. Thank you everyone for your love and support through this whole ordeal. I feel the arms of my Savior wrapped around me, and I know that he is here at your requests!· 1/13/12at 11:51am via mobile

I got to help do Emma's care today! So I helped with her tiny little diaper, check her temp and I got to hold her hand and they moved the billy light, so I could see her face. She is precious! · 1/13/12 at 10:53pm via mobile

Having a really hard time sleeping, can't tell if it's because of the crying babies or the pure exhaustion that consumes me. · 1/14/12at 6:02am via mobile

Adam got to do Emma's care this afternoon, got to put lotion her very fragile skin, switch the o2 sensor to her other foot, check her temp and she held his hand for a little while! Celebrating every moment we get with her!I am home now, sore but glad to be out of that hospital bed.· 1/14/12 at 4:58pm via mobile

Emma is still stable this morning, her nurse said she had a good night. Adam and I will be there at noon to do her care. I miss her so much bit I am thankful foe all of the nurses and drs taking good care of her! · 1/15/12 at 8:38am via mobile

Emma's nurse called her a rock star tonight when Adam called! Her O2 is under 30%! That is the lowest yet for her! Blood gases have been good all day too! I can't wait to see her tomorrow at noon! · 1/15/12 at 10:08pm via mobile

 

Another great report this morning! Emma had a really good night! · 1/16/12 at 8:00am via mobile

It feels good to be able to do most of Emma's care when we are there! Her nurse said that she could tell Emma was glad we were there because she was much more animated! She is almost a week old! · 1/16/12 at 2:52pm via mobile

Had a great visit with Emma tonight! Her nurse said that Emma already has a fan club! She has a lot of spunk! We are almost to the point that we don't have to worry as much about the brain bleed with no change after this long! Tomorrow night we get to help weigh her, almost like holding her! · 1/16/12 at 9:42pm via mobile

Adam and I are having a rough morning. We both are so tired! Amazing how emotional stuff can make your body so sore! I even slept through a pumping time, not sure how I did that, I had an alarm set. · 1/17/12 at 6:53am via mobile

When I called the NICU, I got to talk to Emma's Dr this morning. Her BP is low so they are trying to figure out why. Please pray for her body to fix it's self so that no extra medication or surgery is needed!· via mobile 1/17/12at 7:38am

Thank you so much for the prayers! One fear has been eliminated! It is not the PDA so she will not need surgery or a scary medication to close it! Please pray now that the steroids heal her lungs and make her need for oxygen goes down! 1/17/12 via mobile

They are weaning Emma off the blood pressure medication and they stared the steroids. She was really fragile the whole time we were there. Hard to be optimistic when the alarms keep going off! But each time she recovered well. The nurse assured us that for her age she is doing miraculous! And that she has never seen a baby as young gestationally who didn't have the PDA problem. Emma is a miracle and you are all a part of it! · 1/17/12 via mobile

Happy One week Emma! She is almost completely the blood pressure medication and handling being touched very well according to Roy who is her nurse this morning. He said he put her through Roy bootcamp and she handled it great. He said he washed her and retaped her leads and slathered her up with the lotion. I can't wait to see her at noon! Oh and who knew that Mommy would get so excited about her first poop yesterday?! 1/18/12 via mobile

 

We had a wonderful visit with Emma today! Her new nurse cleaned her up and turned her over (pictures soon to come!) Got to see her all curled up on her tummy! She was breathing "room air" for most of our visit! The Steroids are buying us time for her lungs to get bigger, hopefully when they stop the steroids her lungs will be ready to do their job better! We got to see her x-ray today and it is amazing that her whole body is on one film! Her blood gas was the best that she has had! She handled care really well today too! I got to see that she has a little bit of dark hair, and it looks like she is trying to open those eyes! 1/18/12 at 3:24pm

 

We got to help change Emma's bedding this evening, and help weigh her. That means that we kind of got to hold her! She was breathing "room air" which means her O2 was down near 21%! She handled being moved around really well too! January 18, 2012 at 11:04pm

For all who can attend we are having a potluck to Celebrate Oliver's short but precious life at the stake center on Wellesley at 1 pm Sat. The 21st.January 19,2012 at 5:31pm

Please pray hard for Emma tonight, after having a wonderful morning, she is really having a tough time tonight. Pray that the Drs and nurses will know what to do to help her and that she will get through this ok! January 19, 2012 at 10:39pm

Emma is still doing good this morning, but she is going to have a "rest" day, so the nurse says she won't be touching her unless absolutely necessary. I am praying for Heavenly Father to encircle her in his arms of love and help to get her over this bump in the road. January 20, 2012 at 8:00am

Connor is having a rough morning, throwing lots of fits! He doesn't like to be told no! Yep he will be 2 in 4 months! January 20, 2012 at 9:41am

Emma is doing much better today! She is on a different ventilator and seems to be doing much better for now! She is off the steroid the next 24 hours are a test to see if she can breath well without them. She looks really good today! January 20, 2012 at 3:03pm

We had a good visit with Emma tonight! She handled care really well. We got to help weigh her again, so Adam and I got to lift her a little. She is right at Birth weight, 1lb 3oz. I love her so very much and hope that her little body handles all that lies ahead! I am having trouble fathoming her spending at least 4 months in the NICU it feels like an eternity. How am I supposed to balance home life and hospital life??? We looked at the gas gauge on the car, ouch a whole tank of gas in a week! January 20, 2012 at 10:08pm

My heart is heavy as I think about tomorrow, the finality of putting Oliver in the ground. It makes my heart ache to think that His siblings never got to meet him, but I think that we made the right decision for our kids not to have that image of him burned into their memories forever. They can see the pictures and know that he is real. I am praying for strength to be able to celebrate His life and not wallow in the sadness that he is gone.January 20 , 2012 at 10:11pm

A hard day just got harder, the Dr. Called and said that.Emma is having trouble today. Pray for her little lungs! January 21, 2012 at 9:30am

Headed to see Emma after a long hard day made a little sweeter by the outpouring of love that we felt as we gathered the celebrate Oliver's life! Oliver my son, my baby, Mommy loves you don't worry about me, do the work the Lord has called you home to do. January 21, 2012 at 3:55pm

Precious Emma is doing well tonight! Thank you for all of the prayers on her behalf. I think her little body gets weary in the early morning hours. She is a fighter and she is strong! I love holding her little hand! January 21, 2012 at 5:17p

Adam was able to lay his hands on Emma's head and give her a fathers blessing. I am so thankful for the priesthood and especially the priesthood holder in my home! January 21, 2012 at 7:10pm

Emma has had another wonderful day! Her little lungs like those steroids! They took out the umbilical line and put in the pic line, such a tiny little catheter, I have no idea how they are able to place it! She is looking more and more like a baby everyday less like a fetus! She should open her eyes any day now! January 22, 2012 at 9:17pm

I saw Emma at noon today and she looked great! The Dr is taking her off the antibiotics, he doesn't think she needs them. Also turning the humidity down in her bed. She seems to be doing well on the ventilator, and she tolerated care well to! January 23, 2012 at 6:30pm

Emma is a stinker! She gave us two little scares while we were visiting this evening, she doesn't like suction, so she holds her breath to punish us! Then decides to breath is kind of important. Personality in spades! January 23, 2012 at 8:50pm

Emma is a little love, we got to just spend a little time together this afternoon! My Mom read her "The Tiniest Warrior Of All," I read her a poem that I wrote her this morning. She got a transfusion today, that always makes her feel better too! January 24, 2012 at 4:55pm

Adam and I had a great visit with Emma tonight. She behaved herself perfectly during care! We got to weigh all 510 grams of her! And put the little blanky that Cynthia made her under her head! I love that little princess! It is hard to leave her there! January 24 , 2012at 9:58pm

Just talked to the nurse, Emma's blood gas was much better at 11 then it was at 8 while we were there! She hasn't had any desats since we left! January 24, 2012 at 11:56pm

Happy Two Weeks old to my Dear Baby Emma! She is going to have another echo on her heart, please pray that the PDA is closed still! January 25 , 2012 at 9:43am

Emma has had a good night! She does have that open PDA that we have to watch, but since it isn't symptomatic we aren't treating it. January 26, 2012 at 9:07am

PDA is Patent Ductus Arteriosis: when babies are in the womb their blood is oxygenated by the placenta, not the lungs by this. When the lungs start to do it the duct is supposed to close. If it doesn't close then it puts unoxygenated blood in the heart, can cause blood pressure issues and desats.

January 26, 2012 at 2:53pm

The highs and lows! High Emma opened one eye this morning! She looked at me when I read to her! The Low:Dr. Has decided that our best course of action is to do the surgery while she is stable. So she will have that tomorrow afternoon. Please Prat for the surgeon and for Emma! January 26, 2012 at 1:44pm

  
Surgery Day: Spent time with the kiddos at home this morning, snuggling in bed, playing under the covers and praying for Emma. Jadyn said the sweetest prayer she said, "thank you for allowing Emma and Oliver to be born into our family" She is such a love! Adam and I will head down to the hospital about 10:30ish and her nurse Wanda said we will be able to do her care early so that she can get ready for surgery. Wanda will be with her through the whole thing and give us updates. Then we should be able to go in to see her not long after recovery. I am thankful for a hospital equipped to take care of my little peanut in her bed, right there in the NICU! January 27, 2012 at 8:49am

Surgery is delayed, will update when I know what time she will have it, still will be today.January 27, 2012 at 11:51am

I got to kiss my sweet baby Emma's head for the very first time today! I cried like a baby! January 27, 2012 at 11:58am

Emma is now in surgery. January 27, 2012 at 2:32pm

Dr came out, but he didn't let us know how it went. Sure if something went wrong he would have told us.January 27, 2012 at 3:32pm

Emma did great during surgery! Needed to be done! I guess it was extra large as big as her aorta! January 27, 2012 at 3:49pm

The just turned down the ventilator settings, so already her lungs and heart are able to do their jobs better! I guess this is the "honeymoon" period, in about 12 hours she might get worse as her body realizes what just happened. But they are watching her very closely and we are sticking around until the Dr lets us know she is out of the woods so to speak. January 27, 2012 at 4:43pm

 

They just turned the vent down again! She is doing great! Adam and I are trying to eat at PF Chang's, but there is a long wait for a table. Oh well, the nurses know how to get a hold of us! January 27, 2012 at 6:41pm

Thank you everyone for your prayers! January 27 , 2012at 6:42pm

Emma's chest tube is out, she is healing nicely! January 28, 2012 at 12:45pm

 

 So with all the surgery madness, and worry, I forgot to post that Emma's left eye has opened, she can look at us with both eyes now! In other news they changed her ventilator back to the oscillator to help her lungs a little better, kind of a step backward, but for the best. The Dr said he will start a small amount (literally a drop) of breast milk either today or tomorrow to see how her body handles it. January 29, 2012 at 1:26pm

 

Went to see Emma today at care time only to be told by the nurse that she did it early. Emma's chest x-ray looked a little better but they are doing another at 8 hopefully it will be even better then. My heart aches when I leave her, it aches as I stare at her! I feel so helpless.January 29, 2012 at 5:39pm

 They are keeping Emma pretty medicated, so that she doesn't fight the ventilator. Seems to be working. Jadyn and I are at the Dr. She has a nasty cough and fever. I wont get to see Emma until later, if at all today. Even Adam came home from work to sleep today. I think we are all just tapped out! January 30, 2012 at 10:58am

Emma now weighs 680 grams that is 1lb 8oz! Grow Baby Grow! Tomorrow gestationally she is 26weeks, who would have thought three weeks ago that this journey was about to begin? Not me! She is having a much better night so far! Hopefully we are over the worst of the recovery!January 30, 2012 at 9:40pm

Not loving this roller-coaster ride, "stable" is good but not very comforting! January 31, 2012 at 10:11am

Just got back from hanging out with Emma! She behaved herself nicely! Her blood pressure dropped a little while I was pumping. When I placed my hands on her it came back up! Made me feel important :-) I love that little lady!January 31, 2012 at 3:22pm

Adam and I visited with our little lady tonight and she was really good tonight! The nurses were talking about how amazing she is. Something we found out yesterday is when Emma was rushed out of the operating room, they could hear her crying. She is a miracle! That is true beyond any doubt! February 1, 2012 at 8:47pm

Big day for Emma today umbilical line coming out and mamma's milk going in starting tonight at 10!February 1, 2012 at 1:15pm

Happy 3 weeks Emma! 720 grams! February 1, 2012 at 1:27pm

Urgh!!! Because Emma had to be on her back so long this afternoon after getting that line out of her belly button they had to give her the paralytic to help her breath better. Thus no food tonight :-( But our visit was nice, not one desat while we were there! February 1, 2012 at 9:15pm

 

I got to be there when Emma got fed! .5mL every 6 hours to get her gut to wake up! We shall see, this is "the next big hurdle" that we have to get over. February 2, 2012 at 12:25pm

Emma had a hard day today so our care was short but sweet, she had the tape on her face redone, the food tube put down her nose and a couple of small feeds as well as a new place to draw her blood from and give her meds. While we were watching her we noticed she had the hiccups! Luckily I brought the camera so we recorded it! February 2, 2012 at 9:00pm.

Emma had a good night! Hoping they are going to keep up the "feeds" and that they will be able to wean her even more on the occilator, the can then switch to the conventional vetillator or cpap, cpap would mean I get to hold her sooner than later! But that will come in God's time, not mine! 2/3/12 10:00am

Emma had a big poopy diaper for me to change when I got here! She had one yesterday and one lastnight! The reason this is exciting is beacause they were all done on her own without the supository! The one I changed was more greenish so that means her little digestion system is doing it's job with my milk!!! She handled care pretty well for me too! Dr. Flores thinks she may put her on the conventional ventillator later today is she has good blood work later! 2/3/12 at 12:41pm

Emma is back on the conventional ventillator and seems to be doing well on it! Horray for good days! 2/3/12 4:39pm

I just finished my nighly visit with Emma, Adam stayed home with the kids, Connor has a fever and is grumpy! Emma's blood gas on the new vent was really good, we weighed her 1lb 6oz and measured her she has grown a half an inch in her three weeks of life! Her head is back to 8 inches! She is digesting her food well and not needing her lungs suctioned nearly as often as she was! I made head pads out of the fabric I cut out for Oliver's crib bumber and donated them to the NICU. I made some for Emma too, pictures to come! 2/3/12 9:39pm

Emma has had a pretty good couple of days, she doesn't like being flipped over in her bed, but who would when there is a tube down your throat? Other than that, we got to put a cute little bonnet on her that Megan Osburn made her! So adorable! We even got to leave it on her and not just put it on for pictures. She is no longer on photo therapy since that bruise on her back is gone! 2/4/12 at 8:56pm

 

Emma had a good night and morning so far, she is getting another blood transfusion today, her little body can't keep up with all the blood they have to take for labs. I can't wait to see her at 4! 2/5/12 at 2:14pm

What ever lesson Heavenly Father is trying to teach me by allowing me to go through this trial I hope that I learn fast! It is torture to not be able to go visit my baby!! I feel the first signs of this cold getting me and I don't want to expose her in any way. But it rips my heart out that I can't go see her! 2/6/12 at 8:27am

Emma has had a couple of really good days. They started her on caffeine to help her to start to get ready to breath on her own and keep her heart rate up. It is a step in the right direction, we still have a ways to go before she will be extubated, but it is progress. 2/6/12 at 8:36am

My Mommy is going to visit Emma and learn how to do her care. I am so grateful that she lives here now and is able to do me this great service! Can you believe that Emma's surgery was 10 days ago? 2/6/12 at 11:28am

Emma has had a good day, her desats haven't been as low as they have been. And she has been handling feeds good! 2/6/12 at 8:43pm

One of my favorite nurses is taking care of Emma today, she says Emma had a fabulous night, they weaned her vent settings a little bacause her blood gas was so good and she is handling her feeds well! Dr said he will probably increase the amount she is getting today or tomorrow! I am bummed I am missing all these good days! 2/7/12 at 9:16pm

Dr called and sounded encouraged that Emma is almost off her continual drip pain medication, stooling on her own and alert today! She is increasing her feeds to 1mL every three hours! Still not a nutritional feed, but a step in the right direction! Dr sounded pleased with her progress! 2/7/12 at 10:00pm

Happy Four Weeks Miss Emma! What a crazy four weeks it has been! 2/8/12 at 8:17am

Emma is great! She looked at me the whole time while I read her story to her! She looks amazing! I heard her for the first time tonight, her tube is getting too small so I heard her try to cry around it, little squeaks, I cried! 2/8/12 at 8:37pm

Emma is 1lb 9oz tonight and doing well! She was pretty active and reaching for her tube, but by the time care and her story was done she had calmed down enough to go to sleep. She is so cute!2/9/12 at 8:46pm

I had a wonderful visit with Emma this afternoon! She is still doing well with her feeds and her breathing. She is getting yet another blood transfusion today so she got her first head IV, I am calling it a tiara! I was there when they put it in, the nurse said I handled it well. I guess I am just used to all the tubes and wires, what is one more? She didn't even scrunch up her forehead, it didn't bother her at all. I heard more squeaks today. I am encouraged that they are hoping to not have to switch it out for a bigger tube, they are hoping to be able to just remove it. 2/10/12 at 3:26pm

Emma was her usual self during my visit tonight. She looks really good after a blood transfusion! She sneezed a couple of times in a row, it was pretty cute! She wighed 1lb 10oz tonight! 2/10/12 at 10:54pm

Yesterday was such a busy day I didn't get to post anything here! Emma is one month old as of yesterday. She needed a little more ventilator support for most of the day so they did an x-ray to check tube placement, they moved to tube a little and she did much better. She looked at me the whole time I read her story to her too! The nurse said that it is amazing that she hasn't had any infections in her month of life, she is a miracle! Prayer works, please keep praying for my little love! 2/12/12 at 7:28am

One month ago today my life was changed completely. The Dr. walked into my hospital room and told Adam and I that our little boy was not going to make it. Adam and I took turns holding our little Oliver, my Mom was there. She held him too. Then in my arms he peacefully returned to the arms of our Father in Heaven. Oliver, there is not a day that goes by that I do not miss you! 2/12/12 at 8:12am

Tomorrow is a big day for Emma! She is going to try out being extubated for the first time!! Her tube is too small, since she is growing nicely so air is leaking around it. They have to replace it anyway so they are giving her steroids again to help her with the inflammation in her lungs tonight and tomorrow they are going to see how she does without it! I am nervous about it, but I hope that she will be ready to move on to the CPAP! She was measured tonight, she is now 12 1/2 inches tall! She is getting 1mL an hour in a continuous drip and every 12 hours they are going to increase that by .3mL to help ease her tummy into being ready for full feeds. 9mL is a full feed for her, can you believe it!? 2/12/12 at 8:54pm

 So, new plan is to extubate Emma tomorrow morning. They want the steroids to have more time to do what they do, before removing the tube. I enjoyed my visit with her this afternoon,Dew even with the alarms dinging most of the time. Her blood pressure is a little high from the steroid, but they aren't too worried about it. 2/13/12 at 3:31pm

Had a wonderful visit with Emma tonight! Her nurse lowered the bed so I could sit close and put my hand on her back and hold her hand! It was nice to have the lights turned down and be able to sing to her and have a private moment just Adam, Emma and I! She was calm and sweet during the whole visit and I was able to kiss her good-bye! 2/13/12 at 9:13pm

 

I am freaking out a little! Right now they are taking the tube out of my baby's throat and transferring her to cpap! Yikes! Praying she will do well! 2/14/12 at 12:45pm

Big girl breathing on her own! 2/14/12 at 12:55pm

 

So, to let you know how it went today: They did a blood gas just after noon, when it came back really good the decided that she was ready to try to get off the ventilator. Adam and I were both there for her care. We took care of her diaper, temperature and O2 sensor then they wheeled in the CPAP machine. We went to the waiting room to let them take care of our little one. As soon as I had time to post my previous comment the Dr. came out to tell us how great she is doing and rushed us back so we could see our little girl without any tubes or wires on her face!!! She is BEAUTIFUL!!!! Little chubby cheeks!! She was breathing on her own!! Then they hooked up the funny helmet thingy with the elephant trunk! She is still beautiful! She could still end up back on the vent but this is very exciting! Plus it gives her little lungs a break from the damage the vent does to them! 2/14/12 at 6:38pm

  Just had a very sweet visit with my little lady! She is doing great! She will get 50mL in 24hrs. that is how much I get out of one side each pumping!  She had very yellow seedy poop too!!! Happiness and joy that as long as she remembers to breathe, her body is working the way that it should! 2/15/12 at 12:58pm

Adam and I walked into Emma's room tonight and her nurse Teresa had everything ready for me to be able to hold my baby for the very first time!!! I got to sit in a rocking chair for 45mins skin to skin with my little peanut! JOY is all I felt as she handled it beautifully! 2/15/12 at 9:14pm.

 

Emma is needing some breathing treatments to help her breathe a little easier, but they are doing all they can to avoid reintubating her. She looks amazing and handled care great! Adam adn I are going to dinner and a movie tonight! I am so excited! 2/17/12 at 4:49pm.

I had a really nice visit with Emma this afternoon! I was able to turn her over completely on my own for the first time! She got her arterial line today so she has two free hands and I am sure she is loving that! 2/17/12 at 7:16pm

Got to hold Emma again tonight!  Happiness and Joy! She was trying to take her little nose mask off all by herself! She slept the whole time. Nothing better than a sleeping baby on my chest! 2/17/12 at 9:23pm

 

Emma got a blanky from Auntie Jill! It it so cute! 2/18/12 at 6:45pm

Had a wonderful visit with Emma tonight! She snuggled with me for about  half and hour without one desat! She slept the whole time, even drooled on me! A little baby drool feels "normal", we don't get a lot of those moments in the NICU! 2/18/12 at 9:18pm.

 Big milestone today for Emma!  Her first lab/x-ray holiday! She isn't getting any until tomorrow morning! 2/19/12 at 8:17am

Emma and I were snuggling and she got too warm and forgot to breathe, a little scary but she came back pretty quickly.  It scared me, she was grey, we had to really rub her back and convince her to remember to breathe. I called the nurse, Wendy, a little while ago and she had another episode after I left but she is doing good now. 2/19/12 at 5:51pm

PaPa Denny got to see her without her mask! 2/19/12 at 10:12pm.

 My Daddy and I visited with Emma lastnight. He got to touch her little foot and she her without her c-pap on. She has been slowly losing tubes and wires and she weighted 7:30g lastnight almost 1lb 10oz! And 13 1/4in long!  She is doing really well with feeds but the Dr. doesn't want to give up the extra calories in the TPN gives her. Hopefully as she gains more weight that will go away too! She is a really good digester! I got to lift her all by myself for weighing! And I get to position her myself for bedtime too!  The apneas are just part of being premature, she will grow out of them. 2/20/12 at 7:06pm

Dr. wants to stop he steroids and let her grow, her labs and x-ray were great this morning! We had a nice visit this afternoon! I love spending time with her! 2/20/12 at 1:38pm.

So it turns out that Emma received her last dose of steroids on Sat., her next dose was due this morning and the Dr. decided not to give it to her.  She had a really great blood gas this morning and her x-ray looked alright. She did lose a little weight, but I am sure she will start gaining very soon! 710grams tonight.  She handles the short times that the take the c-pap off really well, her heart rate stays the same and she doesn't automatically desat!  I got to hold her for a little while, but I think yesterday spooked me, as soon as she dipped a little I put her back in her bed.  She is so beautiful, my heart aches when I have to leave her! 2/20/12 at 9:19pm

My Baby is 29weeks gestationally! Amazing Miracles have occurred, Powers of Heaven have been brought to bare in my behalf!  People we know and don't know have been praying for Emma and our family and we have been surrounded with LOVE, as we have going through this hardest thing!  We still have a while before she is home with us, the kids haven't even been able to see her yet, but I know the Savior is by my side through this lifting me up when I have no strength to go on!  Thank you again for all of your prayers and thoughts for Miss Emma, I know she has received strength from you too!  2/21/12 at 7:00am

 

I love getting a call from a Dr. who saw Emma for the first time today and he starts with, "I am really impressed with how well she is doing! In hearing her story, I am really pleased with how things are going! She had a great blood gas this morning and we are going to leave things the same today!" 2/21/12 at 9:06am

Emma had her first eye exam today, the Ophthalmologist says her eyes are still very immature but right now there are no signs of ROP (could cause blindness), she is going to be checked weekly.  She is not going to like that!  The dialate her eyes then shine a bright light in them. She responded with a little desat, just to show us she wasn't pleased! 2/21/12 at 1:22pm.

During my visit with Emma today the nurse gave her a break from the cpap, since her poor little forehead is getting mashed down.  She looked at me and sucked on her binkie for 20mins without it! The nurse even shut off the machine and we were amazed at how quiet it got in the room! She did great the whole time! She is such a big girl, showing off for Mommy! 2/21/12 at 1:28pm

 Adam and I visited with Emma for about an hour last night, I didn't hold her, but sat next to her bed with it open and talked with her. I held her hand and read to her. I didn't want to press my luck holding her after she had spent so my time off the c-pap earlier!  She was so alert and Adam and I got some fun pictures of her holding our wedding rings! Adam's ring fits like a bracelet all the way to her elbow! 2/22/12

Dr. says she is doing great! Things are staying the same again too! 2/22/12 at 11:36am

I LOVE holding my Emma! It is so wonderful to have her near me! I get to touch her without gloves and tell her how much she is loved! I am so proud of my baby girl! 2/22/12 at 1:01pm

Emma had two major desats this afternoon, could be that she doesn't like not having the steroids or she could be just plain tired! Still had a nice visit with her tonight! She did great the whole time we were there! My Daddy tagged along, so Adam and He gave her a blessing. What a wonderful experience. 2/22/12 at 10:16pm

 

Emma is doing great! Great blood gas today! 2/23/12 at 10:08am

When I opened Emma's bed, she was trying to eat her blanket, wide awake! Working on a rather large poop! She was awake the whole short visit too! She looked at me as I was saying good-bye, I almost cried! It was like she didn't want me to go! 2/23/12 at 12:50pm

Adam and I visited Emma tonight, she was doing good, but pretty touchy. So, I didn't hold her at all today. I am ok with that, I will get to hold her plenty when she comes home!  We talked with the nurse about how well she is doing, she called her a "rock star" and said that there have been babies born around the same gestation as her that were much sicker that are doing great now, years later! Hope for the future! She really loves sucking on her binkie. When we first got there she had pulled her feeding tube completely out! She was trying to suck on her hand! She weighed the same tonight as she did last night, 800g .  That is 1lb 12.5oz! She is now getting 3.8mL/hour. The Dr. hopes as her lungs start to heal that she will have less ad less desats! It is exciting to be in the "now she just needs to grow" phase! 2/23/12 at 10:48pm

 

Just ordered more clothes for my little lady! A pretty dress and two nightgowns! Can't wait for them to get here! Another great report from her Dr. today! Again just leaving things the same and letting her grow. 2/24/12 at 10:19am

Emma's DR. said that she is "tickled" with how well Emma is doing this week! Adam and I had a wonderful visit! 810g tonight! 1lb 13oz!  Adam held her binkie for her and her O2 needs went from 42% to 27%. I held her for a long time at my noon visit, it was so nice to just relax and feel her breathe!  2/24/12 at 9:04pm.

I got to hold Emma for almost an hour and a half last night! She had a couple desats right when we got there at 8 in her bed so we left her cpap on for weighing, she weighed 890g with it on. that's 1lb 15oz!!! The nurse was going to re-weigh her at the midnight care but so amazing how close she is to 2lbs!  While I held her she went down to 25% on her O2 and stayed there for most of it! She was doing so well that I dozed for a little while!  Some of her NICU friends(roommates) got to go home yesterday! A set of G/G twins. The gave Emma two pairs of PJ's. I am going to have to get used to babies being born after Emma and going home before her!  I am so happy for them though, they are a sweet couple! 2/26/12 at 7:16am

The nurse weighed Emma three times last night, Emma weighs 890g! 17 more Grams until 2lbs!!! We may just have a party when she reaches it! She is realy doing amazing, still having those desats, but overall doing fantastic! I can't wait to see that cpap go away! 2/26/12 at 4:37pm

I had a short visit with Emma at 4 yesterday, she was pretty touchy during care, then when I came back at 8 the nurse told me she had a pretty bad apnea a while after I had left.  So the nurse and I decided to do some other care things instead of holding. We got warm wash cloths and gave her a good wipe down, and let her head breathe without the white band.  We weighed her, we weighed 1Lb 14oz, but I think tonight she will be 2lbs! The have upped her feeds to 4.1mL/hour and she is doing great with it! 2/27/12 at 6:38am

Dr. just called, the big plan for today is to work on switching to just breastmilk and a little fortifier! Hopefully soon, no more IV nutrition! Pray her little tummy can handle the new stuff and that she will just grow grow grow! 2/27/12 at 10:07am

Had a wonderful visit with Emma this afternoon, I am so grateful to all the people helping me with my other children so that I can visit with Emma often!  I love you all! She is loving binkie time and her oxygen needs have been pretty low! I can't wait to hold her tonight! 2/27/12 at 3:39pm

2lbs!!!!!! 2/27/12 at 8:08pm

Well, one of our favorite Nurses, Teresa, was waiting for us when we went to do care at 8, last night! She had made us a sign and already did her care so that I could hold her right away! I held her for an hour and a half and she did great! I was so relaxed that  I was almost falling asleep myself! We dressed her in her new red dress to celebrate her 2lbs!! New Dr. this morning, he wants to really work on getting rid of the IV nutrition, so he is increasing her feed amount and reducing the IV amount, as well as upping the fortifier by two calories! 2/28/12 at 9:14am

Emma was pretty touchy again yesterday, I tried to hold her and it resulted in her having a pretty bad brady! He O2 sats were down in the teens(ideal is 85-95), she was grey.  They had to bag her to get her to come back up. It was scary, but at the same time it was good for me to see how they handle it, so that I don't have to imagine it much worse than it is.  Her little lungs are still really damaged and her brain is still very immature, so those are going to happen.  They also added quite a bit of food 4.5mL/hour and the 2 extra calories so her little body is working harder than it has before to digest.  Thankfully she seems to be handling the food well, we are worried a little about reflux but we will just have to watch for it.  Her lungs according to the radiologist, look better in some spots and worse in others. Please pray for her little lungs! She is 7 Weeks today, 2lbs 3oz last night, and 13 3/4 inches long.  2/29/12 at 8:47am

990g tonight! So glad she is gaining well and handling her feeds well!  I got to hold her for 2 hours tonight! She had a little desat but came right back up with only a little encouragement. She has a strong neck and a lot of control, she was looking at me towards the end! 2/29/12 at 10:36pm

Emma was down a little to 2lbs 2oz, we will see what she is tonight, she has generally shown weight gain every other night.  She was touchy again last night but I go to hold her for a little while. She is now getting 4.7mL/hour and today she will go up to 3 extra calories. 3/2/12 at 7:23am

Emma weighs 1000g!  1Kilo! 2lbs 3.5oz! She is getting bigger and bigger! I had a nice visit with her tonight, read her the "Sleep Book" by Dr. Seuss, she likes it! 3/2/12 at 9:24pm

Oh no, not again! Stuffy nose and scratchy throat! 3/3/12 at 7:26am

Not chancing getting Emma sick, so no visit today! :-( But the Dr. said "Emma had a very very very good night!" and he is upping her food this morning, then again tonight, then adding another calorie tomorrow as well as hopefully taking out her Pic line!! That means of the tubes and wires will be taped or strapped on! Except the feeding tube, but that I don't count because she removes that on her own every so often! 3/3/12 at 10:38am

Emma's nurses tell me she has had a great day and she gained 10g! Hoping that pic line comes out tomorrow! 3/3/12 at 11:04pm

Dr. called this morning with "Nothing but good news to report"! He is happy with her progress on her feeds, adding that extra calorie per ounce and then that pic line can come out! We will see if she continues to grow without it! 3/4/12 at 10:12am

Pic is out! Little milestones like less and less tubes and wires are helping this journey feel like the destination is reachable! 3/4/12 at 5:34pm

Emma is doing great today! Got to visit with her for a little while, I missed my girl! 3/5/12 at 3:33pm

Emma weighed 1020g tonight! 2lbs 4oz and tomorrow at noon she will be at full feeds, 6.3mL/hour! They will slowly increase the rate that she gets fed so that she will get ready to get it all at once, instead of continuous drip.  She is still having her desats but she is doing amazing with her digestion! 3/5/12 at 10:21pm.

As of just now Emma is on full feeds! I was starting to think she was never going to get there! 6.3mL/hour! The number of pumps next to her bed is down to 1! Just for milk! She was just at 22% o2 and hanging out there!  We have come a long way! There used to be 4 or 5 pumps and it as a good day if she got down to 37%! 3/6/12 at 12:31pm

What I made for Emma! 

 

Happy Baby while I read her Dr. Seuss!  3/6/12 at 9:50am

Holding her like big girls get held! 3/7/12 at 1:15pm

 

Holding my baby girl in my arms today set me on memory road! She has come so far! The Dr. thinks CPAP will be needed for a week or two longer but that she is doing great for her gestation! 31weeks yesterday! 8weeks old today! 3/7/12 at 1:19pm

Adam held Emma for the first time tonight! She did great! So did He! Emma weighs 1040g 2lbs 5oz! She handled us dressing her up tonight too! 3/7/12 at 10:30pm

 

Emma had an over all very great day today! She was down to room air more today than I think she ever has been! She is still having those deep desats that make me nervous, but she pops right back up! One thought today is that her hematocrit is the lowest they have ever let her get, because she is over all more healthy now, and she is on a medication that is supposed to help her keep it up. But she will probably need a blood transfusion tomorrow. In the past she has done much better after she got one. Other than that she is digesting fantastically and she didn't gain or lose any weight tonight! 3/8/12 at 10:44pm

Emma is having a fabulous day! Only needing 21-24% O2 and she got upped to 25 calories per ounce today! So far so good! Last night her nurse couldn't take it anymore and moved her feeding tube from her mouth to her nose. Emma was pushing it out with her tongue, she didn't want her to accidentally inhale any of her food! I got to see her little chin for the first time in a really long time. She has Adam's chin! There is a tiny little dimple in her chin! I got to hold her for a long time this afternoon. The Dr. decided to turn down the pressure on her CPAP a little bit. 3/9/12 at 3:32pm

 Emma has had an amazing day! During my visit tonight and the whole time I was holding her there were very few "dings" so she stayed pretty much where she needed to with her sats!!!!! She is a miracle, her nurae said "everyday is a celebration of how amazing she is"! Oh and she blew doublimg her birth weight out of the water tonight!! 1080g=2lbs 6oz!!!! Birth weight was 530g=1lb 3oz!!!! 3/9/12 at 10:12pm

Snuggling my girl while she sucks her binkie! 3/12/12 at 12:46pm

 

 Emma is having another wonderful day! It was so strange to be holding her and there was silence in the room, no alarms for any of the babies she shares with and none for her!!! She will be completely off the cortizone steroid(for her adrenal gland) by Tues, and she is going to stay at 25calories per ounce and see how she does! 3/10/12 at 1:42pm

Emma And I snuggled for a long time tonight! She handled it really well, she did have a couple desats, on worse than the other but she came right back up! She weighs 1090g tonight! I am so happy she seems to have turned a corner on her O2 needs! She was down to 22% towards the end. 3/10/12 at 10:08pm

I had a really wonderful visit with Emma today! I get to hold her for almost 2 hours and she slept comfortably the whole time. Her nurse was willing to let me hold longer but I had to pump and get back to my other kids! I am so thankful that she is doing so well lately! 3/11/12 at 9:43pm

Nakie Baby, ready for skin to skin! My happy place! 3/12/12 at 7:11am

I held Emma after I took care of care today, she was having a hard time when I got there. I was worried because her O2 needs were higher than they have been in a while and she spit up, for the first time that I have seen. But we found that she had pulled out her feeding tube most of the way. Once that was where it was supposed to be she settled nicely! I held her for an hour! We are surprising the kids tonight, they get to see her at the window!!! First time they will meet her! 3/12/12 at 6:15pm

Last night was really great! We got there a little early and Teresa had everything almost ready for transport. We helped get her little hat and headband on, I washed her face and changed her diaper. Then we put her in the wheeled bed and took her to the window! It was so great to see my other kids' eyes light up at the sight of her! We got a family picture with me holding Emma on one side of the glass and Adam and the other kids on the other! Such a wonderful gift that our nurse gave us! Most nurses wouldn't have done it. Thank you so much Teresa! You are so amazing! 3/13/12 at 8:02am

 

 

 

Emma now weighs 1140g that is 2lbs 8oz!!!!!!! She is an amazing digester, they added on more calorie per ounce lastnight so that makes her on 26 cals/oz. She is 14 1/4inches long! I got to do her care all aone today, her nurse was helping with another baby. It was nice to have some Emma and Mommy time. I held her for a while and once again she did great! She amazes me every single day! 3/13/12 at 1:57pm

Holding Emma last night was such a joy! She was zonked sleeping soundly on my chest, it was so relaxing. 2 1/2 hours later the nurse asked me if I wanted to hang out longer, I had to decline because I needed to pump and get home to bed myself. But what a wonderful thing! We dipped her binkie in my milk and had her practice, suck, swallow, breathe, she loved it and did beautifully. 3/14/12 at 7:58am

1200g!!! She is growing like a weed!! That is 2lbs 10oz!!! It was all that good growing sleep she got on my chest last night! I am so proud of my little lady! 3/14/12 at 9:19pm

This is for Auntie Jill!

How come sometimes when you are in the tunnel the light seems to keep getting farther away???? 3/14/12 at 7:12pm

Emma had her first real bath tonight! She has had wipe downs but never gotten in the "tub", she did really really great! I got to wash her and Adam helped keep her sensor out of the water. We make a great team! She seemed to really enjoy it! We weighed her and she is up 20 more grams! 2lbs 11oz! She is growing so fast! She is 9weeks old today! 3/14/12 at10:25pm

 

 

Grandma Lisa's first time holding Emma!Happy Birthday Grandma Lisa! 3/15/12 at 12:21pm

Emma was down 10g when we weighed her tonight, but I am not worried, she will gain that and more tomorrow night! As I held her she was able to go down to room air 21%! She stayed there for about a half an hour, that is pretty amazing for her! We put a preemie two piece outfit on her, her first pants! It actually fit her better than I thought it would! 3/15/12 at 9:15pm

So so so happy to report that I just held my baby girl and she didn't desat once the whole time!!!!! Dr turned down the pressure on the cpap, one step closer to the high flow cannula! 3/16/12 at 1:14pm

Looking around 3/16/12

 

1230g tonight, still 2lbs 11oz. She is doing amazing! Only two apneas today! I am so happy she seems to be moving right along! 3/16/12 at 9:38pm

So excited to see my baby girl soon! We spent time running around and going to Cabela's with the Quintons today so this is our only visit. When I called earlier her nurse said she had a great night, only one apnea and very low O2 needs! 3/17/12 at 3:38pm

Miss Emma gained 60grams! She is 2lbs 14oz!!! I am so happy! She is doing amazing on the high-flow nasal cannula, having fewer desats and less apneas!! She is rockin' it!! 3/18/12 at 12:03am

I guess I am starting to see the end of the tunnel, a little. Maybe just a little brightening at the very edge of my vision. I ordered Emma's girly carseat and it will be here on Tuesday! Adam painted the clouds on the "sky" walls of her room! 3/18/12 at 2:45pm 

Emma is getting 3 hours worth of food in 2 hours! Then getting an hour off. Moving towards bolis feeds. She looked really good today! I got to hold her, she slept the whole time, until we put her to bed. Then wide awake! 3/18/12 at 6:19pm

Emma gained 30g today, weighs 2lbs 15oz and is 15inches long! So close to 3lbs!! Crazy how fast she is growing! 3/18/12 at 9:52pm

Emma is 3lbs!!!! Her feeds are going great and she is still doing wonderful on the high-flow nasal cannula! I am amazed at how fast her little body is growing! Her head grew 3/4 of a centimeter too! 3/19/12 at 10:39pm

Emma and I got to "nurse" today!!!! After I pumped we got to see what she would do! She didn't latch on but she did seem to enjoy the closeness! Me too! 3/20/12 at 6:59pm

 

3lbs 2oz!!! 1410g!!! Gaining right on par with where she should be! Love seeing her root vigorously! Little Parana! 3/20/12 at 10:28pm

Emma's feeds are getting comdensed down to over 90mins!!! Moving in the right direction, she is going to start seeing the OT and I will be learning some stretches to do with her during care. They will help too with breastfeeding readiness! 3/21/12 at 1:27pm

Emma's carseat is here! Starts at 4lbs, it will be ready when she is!

 

Emma love the new binkie that Mommy bought her! 3/21/12 at 9:50pm

Up 10grams tonight! Still 3lbs 2oz but up a little! She and I had a practice session tonight since she was wide awake! She knows what to do! She got a couple little drinks tonight and didn't desat! She was determined! I love seeing fewer and fewer apneas and bradys on her record sheet!! All day until I left at 9:30 she had only 1!!! 3/21/12 at 10:54pm

At my Mommy's surprise party! Emma is back on cpap please pray for her! 3/22/12 at 6:23pm

Blood work came back fine, she had a pretty bad apnea so the Dr is erring on the side of caution, put her back on cpap and continuous feeds. She is 3lbs 5oz tonight! 1500g! 3/22/12 at 8:44pm

 

  I am trying to keep my perspective in check! Emma did amazing on the High-flow cannula for 5 whole days! That is much longer than anyone in the NICU expected! She is "the tiny warrior and she is strong!" I know that she will get to come home with me before Memorial Day! She has almost tripled her birth weight! 3/23/12 at 8:10am

skin to skin with Mommy! 3/23/12 at 12:50pm 

 

Adam and I had a quick visit with Emma after a busy morning, including Pace family photos and most of the fam went shooting before that! Emma looks great, hanging out at room air then up to 23% for care, she was looking at us pittifully, I think she hates cpap as much as I do! 3/24/12 at 6:10pm

Skin to skin "nursing" practice was great tonight! I thought that she wasn't going to wake up at all, then all of a sudden her eyes were open! She was looking around a lot, taking it all in! Putting her back in bes awake sucks, but my pillow is calling my name! We put the family picture in her bed, so she could look at it! 3/24/12 at 10:48pm

I just took a little nap on a blanket in the front yard, I love Spring! It was so warm and nice I wanted to stay out there longer, but I get to go see my baby soon! 3/25/12 at 2:45pm

Emma was wide awake while we did our nursing practice! She even latched for a couple of sucks at a time! Not one brady so that means her suck, swollow, breathe reflex is more mature than she should be now! She was interested for an entire hour before zonking out! She was 3lbs 7oz!! 3/25/12 at 6:16pm

Working in condensing feeds again! On track again! 3/26/12 at 2:41pm

Adam went up at 5 without me and held his baby girl! Then I went up at 8 and we did pacifier dips for practice suck, swallow, breathe. She didn't really wake up, so I didn't get her out of her bed. She is doing really well with the condensed feeds and hopefully we will be back on High-flow nasal cannula tomorrow or the next day. She gets her first vaccine shot tomorrow. They spread them out over three days. 3/27/12 at 8:14am

Emma's tree in progress 3/27/12

 

Getting closer!

 

 I was taught a little infant massage for her legs at my 11:00 visit yesterday, she seemed to really like it. Emma weighed 1550g lastnight, that is 3lbs 8oz! I can't believe how big she is getting! She was pretty alert and tried to latch, but mostly just pacified. It was sad to hear her cry as I tucked her back into bed. 3/28/12 at 7:41am

Emma weighs 3lbs 10oz!!! She has gone to 90min feeds and handling it well! She practiced nursing both time I held her today and she handled that well too! I learned new stretches and other therapy things to help her bones grow. She has more than tripled her birthweight at 11 weeks old today. I am so proud of her! 3/28/12 at 10:32pm

Emma's crib blanket that I made her today. 3/30/12

 

All snug as a bug! 3/30/12 at 10/42pm

 

Emma is 3lbs 11oz again tonight, she only gained 10g. I think tomorrow she will gain more. Her food is 32mL over 1 hour now. She is moving in the right direction! 3/30/12 at 10:46pm

Daddy time! 3/31/12

Emma gained 50g yesterday, putting her at 3lbs 13oz!!! Dr condensed her feeds to 32mL/45mins, so far she is tolerating that well! 4/1/12 at 6:58pm

  

Just got off the phone with Emma's nurse, she is 3lbs 15oz!!!!! I can noy believe how quickly she has gained! 12 days and she is so close to 4lbs!!! 4/2/12 at 9:16pm 

Guess who's baby is 4LBS??? This lady, that's who!!!!! 4/3/12 at 10:43pm 

Emma was born 1lb 3oz (530g) on Jan. 11, 2012, went down to 1lb .5oz that week. It took 47 days before she reached 2lbs, 21 days later 3lbs and now 13 days later she is 4lbs (1820g)! Miracles do happen! She has more than tripled her birth weight in less than 3 months! 4/3/12 at 8:57am 

Eye Dr saw a tiny bit of ROP in both eyes today, but he wants to see her in two weeks, so he isn't too worried about it. It could cause all sorts of vision problems but if caught early they can correct it. 4/3/12 at 6:14pm.  

Emma is a rock star! She nursed like a champ tonight and got 5mLs!!!! Not bad for her very first nutritive nursing!!! Her goal is 10mLs in the next week or two. I am so proud of my tiny warrior! 4/3/12 at 11:45pm 

Sleepy girl! Milk coma!

 

1880grams (4lbs 2oz)!! She wasn't able to latch very well but she sure did at my 11:00 visit today. It was such a pleasent visit tonight she only desatted a couple of times when I first started her care, then not again until O put her back to bed. They weren't very low and she didn't require any extra oxygen to come back up!!! She was at room air the entire time!!!!! Earlier she was too! My little miracle is progressing nicely! The OT said that her movements are very mature and her stretches have been working wonderfully on her hips!! 4/4/12 at 10:12pm 

Don't leave Mommy! 4/5/12

 

Emma is up 20g to 1910g that is 4lbs 3oz!!!!! She is doing amazing. Now we have to work on getting the pressure dialed down on her high-flow cannula and then work on breastfeeding more!!! I don't know when they will move her to a big girl bed, not in any hurry since it will take more energy to keep her temp up and she may not gain weight as well. 4/5/12 at 9:59pm
 
Uncle Sam and Auntie Melissa meeting Emma for the first time!

 

Emma just took 12mL by breast!!!!!! That is 2mL over her goal, about 1/3 of what she is eating a feed and she did it in 15mins. She is an amazing rock star!!!! The Dr also turned her O2 pressure down from 4 to 3 she did great while I was there!!! 4/6/12 at 12:55pm 

1980g, 4lbs 6oz she is trying out an open bed tonight, we will see how she does! She latched great tonight, so excited she has done so well with the pressure on her oxygen turned down!!! 4/6/12 at 10:18pm 

Emma did great keeping her temp up, they even had to take on of the blankets off of her because she was too toasty!! She is still in the same bed, just with the lid up. She will probably move to a bassinet in the next week though. Dr. L says she is going to give her a couple of more days with 3L and prob Monday dial it down to 2L, she said she has to remind herself to go slow with Emma, but she was tempted to just take the high-flow away completely. That gives me hope that Emma probably wont be going home on oxygen! I had a short visit today, now off to Easter Dinner with my Fam! 4/7/12 at 12:55pm

  Adam and I visited Emma together at 5, thank you Mommy for watching our kids! She slept the whole time, nothing sweeter than a baby sleeping soundly on my chest! We get to make another trip to the window tomorrow, the kids will be so happy when we tell them! April 7, 2012 at 6:48pm

 

Emma weighed 2060g (4lbs 8.5oz)last night, and tonight weighs 2100g(4lbs 9oz) she only has 20 more grams to gain before she has quadrupled her birth weight!! She is keeping her temperature up and even getting too warm when the nurse bundles her too much! She will be 36weeks gestationally on Tuesday! That is what Jadyn was when she was born! Wednesday she will be 13 weeks old and I am so proud of my baby! You can tell that she wants to eat, she is nursing really well for a beginner and hopefully she will be ready to go down on the pressure more so that we can really get down to business on getting her ready to come home!!! April 8, 2012 8:38pm

 

 

 

My kids were singing songs to Oliver all morning, how they love him, miss him and wish he was here. Jadyn prayed the other day that "the resurection would happen while she is still alive", And Kira keeps asking my why he had to die. He is definately not forgotten in this home. 13 weeks ago He was alive inside me, kicking and hiccupping. I am so thankful for eternal families and the comfort that brings! April 9, 2012 9:45am

  Emma weighed 2060g (4lbs 8.5oz)last night, and tonight weighs 2100g(4lbs 9oz) she only has 20 more grams to gain before she has quadrupled her birth weight!! She is keeping her temperature up and even getting too warm when the nurse bundles her too much! She will be 36weeks gestationally on Tuesday! That is what Jadyn was when she was born! Wednesday she will be 13 weeks old and I am so proud of my baby! You can tell that she wants to eat, she is nursing really well for a beginner and hopefully she will be ready to go down on the pressure more so that we can really get down to business on getting her ready to come home!!! April 9, 2012 11:56pm

My baby took a full feed plus a mL at 2:00am!!! A FULL FEED, by mouth!!!!! Before that the most she had taken by mouth was 12mL a full feed is 39mL! Dr. I turned down her flow to 2L on her high-flow nasal cannula. I am hopimh she will ne on the regular cannula by next week!! April 9, 2012 3:45pm

Emma's second bath: April 9, 2012

 

 

Emma has quadrupled her birthweight and then some!! 1250g 4lbs 12oz!!!!! She didn't wake up to nurse at 11 hopefully she will tonight! She is at 2.5L on her flow and still spending most of her time at room air. Lots of new roommates today, two very new babies and a baby from a room across the hall. Have't gotten to meet the parents yet. Emma hasn"t been moved, not once since she moved in 13 weeks ago tomorrow! She is 36weeks gest today!! April 10, 2012 at 1:14pm

1280g tonight 4lbs 13oz! She was wide awake tonight and breastfed pretty well. I got to hold her during her breathing treatment and all the way through to her next care. Adam called the NICU to make sure I was ok. And yes I was great! I love snuggling with my Em! April 11, 2012 at 12:13am

When I walked into Emma's room, her nurse Gloria, was organizing Emma's things into her new bassinet!! She is in a big girl bed!!! I am going to start offering her a bottle after beeastfeedimg to see is we can build up her stamina! Our goal is to get her to take all of her food (when I am there) by breast or bottle!! She took 4mLs from the bottle after a really great nursing session! The OT listened to Emma with the stethescope while nursing and she says Emma has mature suck!! Suck, swollow, breath every time!!! April 11, 2012 at 1:15pm

Emma was back 2150g tonight, but it could be the new scale (the bed became a scale in her old bed). She breastfed and then took 17mL from a bottle, she seemed full so we didn't give her anymore through her feeding tube. I am excited that she met her goal on the day that we made it! April 11, 2012 at 11:58pm

At 11 my Mommy came with me to visit Emma, she helped with care and then I nursed Emma. She did great and then took 20mL, so no gavage!! Again tonight no gavage!! She wasn't really into nursing but took 33mL from the bottle!! She didn't gain any weight, hopefully she will gain tomorrow night! April 12, 2012 at 9:45pm

Emma is such a big girl! On Regular Cannula!! April 13, 2012 at 11:07am

   

 Emma nursed for 20mins then her nurse, Wanda, extracted it to see how much she got! She pulled out 25mL!!!!! That means that she got a little bit more than that!! Then she ate 28mL from the bottle!! That is more than what a "full" feed is!! She is on the regular cannula and doing great with it! I am so excited for my little lady to be progressing towards home!! April 13, 2012 at 3:46pm

 

Daddy feeding Emma for the first time! He is a pro already! April 13, 2012 at 8:33pm

  

Emma did gain weight today: 100grams!!!!! She is 4lbs 14.7oz!!!! Daddy gave her her bottle and even though she nursed for a while she took almost her full feed amount!! Oh yeah and she had NO DESATS on room air while we were there, in fact when I pulled the blanket back when I got here there tonight and her cannula was oxygenating her eyes and she was satting 100. I am so excited, she is amazing! April 13, 2012 at 10:10pm

Emma was wide awake the whole time and even though she got more than she normally eats, she was still rooting when we put her back to bed. I was just watching her, her nurse Karyn said I could try to nurse her again. I had no problem scooping up my baby and snuggling her again. She didn't want to nurse so I gave her her binkie and cuddled her close! She looked at me and then closed her eyes and went to sleep. I also checked her A's and B's sheet and the last one she had was last night! Dr. I also wrote on her chart that we may start experimenting with her coming off of the caffeine and slowly weaning down to get rid of the cannula all together! The discharge nurse also asked me what school district we live in and who Emma's Pediatrician is going to be. All very good signs that she is doing so much better! April 13, 2012 at 11:01pm

Jadyn and I got to go yard saling today!! Fun stuff! Emma has had a really great day! She nursed her entire feed at 2, then took her entire feed from a bottle when Daddy was there at 5 amd then ate her entire feed from a bottle again when I went at 8!! They tried to wean her down to on the cannula from 1L to .5L and she wouldn't have it! Lots of desats! So she will stay at 1L for a little while longer. My sweet girl is having a lot more awake time, it is fun to see the faces she makes. April 14, 2012 at 9:42pm

I am pleased to announce that my baby is 5LBS!!!! That's right!!! She is 16inches long! Emma will be 37week gestationally on Tuesday, Kira was born at 37weeks and she was 5lbs and only one inch longer!!! April 15, 2012 at 10:07am

Emma's doctor today came in joking with me that if she keeps this up they may have to send her home! As of today, she is off caffeine, epogen(sp?) it's for anemia, and iron!!!!! He said that all of her recent apneas are obstructive so she hopefully she has grown out of her central apneas!! We will find out as the caffeine gets out of her system (about a week). She is going to be working on taking all of her feeds by breast or bottle in the next few days! And just so I am ready, I am taking the discharge class tomorrow. They can't accuse me of holding up the show!! April 16, 2012 at 4:34pm

Emma is a little stinker she had a pretty bad, brief apnea on me tonight. She nursed really well before that and took 10mL by bottle, she was probably done after breastfeeding and got too comfy on me! She weighs 5lbs 1.5oz and took three feeds in a row by mouth today!!! April 16, 2012 at 10:10pm

Emma nursed great today! She zonked out after and I got to hold her for an hour. I had to put her down so that I could eat. Her eyes are getting checked again! I am hoping that everything looks good! April 17, 2012 at 1:06pm

Emma's eye exam went well. She still has some maturing to do but so far she still just has the mild ROP, it is very good that it hasn't progressed. Another exam in two weeks. April 17, 2012 at 2:53pm

    

Emma weighs 5lbs 2oz! We are stepping up her feeds she will only be getting two or three gavage feedings in a 24hour period! I am hoping that she handles that well and doesn't need the feeding tube much longer! April 17, 2012 at 9:50pm

Emma is 14weeks! April 18, 2012 at 9:22am

 We are trying .8L on her cannula...hopefully that will go well! I got to sit and hold her for a while after her meal and it was so comforting feeling her breathe. I can't wait to have her home with out all of the beeps and dings of the NICU interupting my snuggle time. April 18, 2012 at 2:54pm

I know it is totally irrational but I am really upset they are moving Emma to a new room tonight! April 18, 2012 at 9:56pm
I just got a phone call that now she is not going to be moved, at least not tonight. Her nurses don't want her moved either. Thank you Melissa for the thin mints they are helping! April 18, 2012 at 10:44pm

Sleepy girl!

 5lbs 4oz growing big! She is going to start a Dr. Brown's bottle with a preemie nipple, she is breathing a little too fast for our liking. It could be that she is just compensating because she is working harder than she has before. Also her blood pressure is a little high, we're going to watch it. Tomorrow is 100days, can't believe how far she has come! April 19, 2012 at 8:19pm

The new room doesn't bother her! April 20, 2012 at 12:47pm

Emma is 100 days old today! The NICU staff moved her to a different room this morning. I will be really glad when I get to make decisions for my baby! April 20, 2012 at 7:16pm

Emma was really alert tonight, she nursed well and then I put her in a new outfit and did a little photo shoot. We got new footprints, hard to believe she is the same girl! April 20, 2012 at 10:27pm

My Daddy convinced me to take some time for myself today, we went up to Quinn hotsprings, it was great! Jadyn and Kira came with Daddy, Chelsy and I! So relaxing! April 21, 2012 at 6:06pm

I rushed down as soon as I got back from the hot springs to see Emma, she was totally asleep but when I rolled her over she woke right up and started trying to eat her blanket. Then for her 8:00 care we started with weight 5lbs 7oz and then I gave her a bath, all by myself!!!!! It was so good for this Mommy's heart! She did awesome! We are still working up to bottle or breast at every feed, but we are getting closer! April 21, 2012 at 11:02pm

   Mmm...milk is yummy!

Emma woke up to eat at 5 when Adam and I got there to see her! She hadn't done that today once. Her nurse said that she was a little puffy this morning and that could mean that she wasn't feeling too good. Her nurse tonight, though had better luck! Emma ate more than her whole feed amount in 20mins! The Dr. ordered an ultrasound on her kidneys for tomorrow to see if that is causing her high blood pressure. I am hoping that is not the problem. Both of the nurses from today think that she just needs a little diuretic and that will make her feel better, and help with many other things! She was up 15g tonight. April 22, 2012 at 9:45pm

PaPa Denny's first time holding Emma! April 23, 2012 at 5:56pm

  

 

  

  

Emma is down in Intermediate NICU! We are changing things up! She is 17.5inches and 2480g. April 24, 2012 at 12:07am

 

Kira and Zoe both wore this outfit!

Yesterday Emma's Dr. also ordered and echo on her heart to see if that could be causing her high blood pressure. The report came in late last night that her heart ventricles are slightly enlarged. Now the question is whether that is the cause or the effect of the HBP. Hopefully the dr. will have more info for me today. Also the "step down unit" is nice, very quiet and I got to sit in a rocking chair. I got to weigh her and measure how long she is all by myself and sit and snuggle after she ate for a long time! They are going to keep core staff as her nurses since they know Emma. Her nurse said she was going to try to wean her to .5L last night, also switch to a feed on demand (or every 4 hours) schedule. I don't know how I am going to be there when she needs me, but we need to get her eating all of her food so she can come home! She has officially been off the caffeine for 7 days, hopefully she has grown out of the apnea, her last central one was on the 19th! April 24, 2012 at 7:16am

   

Dr. I thinks the enlarged ventircles are consistant with Emma's long time on the cortizone steroid, and that her blood pressure will even it's self out as she gets older. No results back from the kidneys ultrasound, but he doesn't think they will fund anything surprising there. Just going to keep an eye on the bp and keep plugging along. April 24, 2012 at 3:54pm

Emma passed her hearing test!!!! April 24, 2012 at 9:42pm

Emma is 2510g=5lbs 8oz tonight! She ate well while her nurse,Teresa, and I discussed what a miracle she is! We are hoping that while Teresa is on vacation we will get discharged. Trying not to get my hopes up though. April 24, 2012 at 9:49pm

Emma weighs 5lbs 10oz tonight!! Her head grew half a centimeter and she nursed for a long time! We are going to see if a 4hr schedule will work better for her, that way she sleeps longer and is more alert when it is time to eat.
Who in Spokane has a pediatrician they love? I need to pick one for Emma.April 25, 2012 at 11:08pm

So Emma is having a bunch of blood work and other tests because of something they saw on the renal ultrasound. She will probably just have to be monitored for a while to make sure it doesn't become symptomatic! Teresa made signs for above Emma's bed tonight, so that if she gets any new nurses they wont over react or under react to stuff that she does all the time! April 25, 2012 at 11:17pm

Today the LIGHT at the END of the TUNNEL was switch ON!!!! Emma has taken all of her feeds by mouth for 24hours. The Dr. said to me today, "I am really impressed with Emma's progress. But I don't trust her, so it will probably be Monday or Tuesday." I just stared at her like she wasn't speaking English. Then Emma's nurse reminded the Dr. that Emma still has some pretty scary spells and needs a little extra O2 occasionally. The Dr. then said, "Oh, I thought she was closer to getting off the O2" then she says, "I would rather not send you home with O2, when she is so close! If I send her home on O2 then it goes in slow motion and it takes months to come off of it. But in the next week or so, I think she will be ready!" April 26, 2012 at 5:50pm

I got to nurse Emma two feedings in row and she did great! She is trying out her rock n play sleeper! She was a little sleepy lastnight and had two gavage feedings, but I am hopeful we will get rid of that feeding tube soon! April 27, 2012 at 5:54pm

 

  

We had fun at the March of Dimes walk!!! What a great way to support a wonderful cause!! Emma is still with us today because of the March of Dimes! April 28, 2012 at 12:23pm




Emma was 5lbs 12oz lastnight and tonight she is 5lbs 14oz!!! Crazy how close she is to 6lbs already!! She has been eating well and last night she went an hour and a half without the oxygen!! She had taken it out of her nose on her own so the nurse left it out!! She did great until it was time to eat again! I am hoping that the bad desats are a thing of the past! When I got there this afternoon she was wide awake waiting for me! You know your baby is doing good when the nurse has her in her lap when you get there!! April 28, 2012 at 9:13pm




  Great Grandma Beth holding Emma for the first time! April 29, 2012
Adam's Grandma held/met Emma for the first time! Emma even smiled at her! She ate well and then had a brady on me then I burped her and she nursed on the other side until she brady'd again. That time was not good :-( oh well she is doing amazing for how early she was born and she isn't even to her due date yet! April 29, 2012 at 7:51 pm

6lbs!!!!! April 29, 2012 at 10:23pm



Adam called to check on Emma at 5:30 since he didn't get to go see her this afternoon, Dr. L changed the way she is getting O2 today so we wanted to know how her feeding went. Her nurse Wendy said she was doing so great that she turned off the O2!!!!! So at least for a while she has been off the oxygen!!! That is HUGE! We will see how it goes but that is definitely a step in the right direction! April 30, 2012 at 6:59pm



Emma had a great day today! They changed some things up which means we are on the path to home!! She nursed great tonight after I gave her another bath all by my self! She loved it! She was down 15g today, but she gain 2oz each the last 3 days so I am not worried!! April 30, 2012 at 10:46pm



Dr. Shay (Emma's opthamologist) said "Well she has beaten the odds, her eyes look great!!!" NO ROP!!!!! Miracle!!! May 1, 2012 at 3:42pm


This NICU journey has taught me a lot of things, one thing that always gets me though is the Rollercoaster one day she is doing wonderfully, the next she is getting bagged again....I just wish I could be there more. It feels like I have my feet planted on quicksand!! And they moved her again without calling me. May 1, 2012 at 10:05pm

In my worry for my baby I forgot to tell you she weighed 6lbs 2oz lastnight! I may have a 7 or 8 lb baby when she comes home! May 2, 2012 at 7:28am


Auntie Jill came with me for my 12:30 visit today! She got to see Emma in the out fit her and Jeff got her! So Cute!! And I even snuck Emma into her arms for a few quick seconds!! Emma nursed well and then slept on me for a while. Not one desat for me! Just a reminder that she is close, but not ready yet! May 2, 2012 at 5:23pm


Emma had a great night and she nippled her whole feed for her nurse, Kathy this morning! I can't wait to see her at 12:30! Connor is two today! I can't believe that 2 years ago today I had the BEST VBAC ever! They laid him on my chest and that is where he stayed for almost 3 hours! My sweet little man, every day he makes me smile! May 3, 2012 at 10:04am
 
Emma's nurse decided to be brave and took her nasal cannula off at 10:30 this morning!! She did great for me during her care and even nursed perfectly without it!!!!! Adam will be there for her 4:30 meal, I am hoping she will still be off of it!!!!!!! May 3, 2012 at 2:52pm
 
Emma has been off nasal cannula for 12hours and doing pretty well without it! She was a stinker for Daddy when he tried to give her a bottle, but nursed well for me tonight! She is self correcting and that is a very good thing! I am hoping that she takes a bottle well for her nurse Lori tonight! May 3. 2012 at 10:54pm

 Emma ate two if her three meals completely and a little over half of the third by bottle last night!!! She has still been off the O2 except for during eating!!!!!! I am bursting with pride for my little warrior! May 4, 2012 at 8:17am

 Wide awake ready to play!


Grammie Lori held Emma for the first time!

Highs and Lows are not yet a thing of the past! Emma took her bottle great this morning, then nursed wonderfully for me at 12:30, but between then when Adam got there at 4:30 she had a really bad spell then a couple of not so great ones. Adam held her as her feed was given through her tube. My heart is aching!!! May 4, 2012 at 6:01pm

I got up early to pump and Adam said if you hurry you can make it up for Care at 8:30, so I got ready quick and headed up to see my girl! She was sleeping soundly on her belly! I turned her over and she gave me a little "what?" look! Then decided she was hungry! She took her whole bottle and stayed awake looking at me and cooing! Even when I was leaving and had her all tucked in she was still wide awake! May 5, 2012 at 10:57am

Last night it finally happened. What I was worried about down at intermediate!! I had a (new to us) nurse treat me like a newbie! She even used the word overstimulated (luckily not referring to Emma or I would have bit her head off!!) Katie and Eric know what I am taking about!!!! The nurse had me give her a small amount of milk in a bottle first thing because Emma has some vitamins and medicine she has to take, she ate that great but then it took me 10-15 mins to convince her she was still hungry thankfully she did eventually nurse well. We snuggled for a while then I tucked her in! May 6, 2012 at 7:34am


Sunday afternoon with Daddy! May 6, 2012
6lbs 6oz and 18 1/2inches long!! Now bigger and longer than any of my other babies!! May 7, 2012 at 11:05am

Tomorrow is the due date I got when I had my first ultrasound at 7 weeks, that is when Adam and I were surprised to find out there were two babies! As of tomorrow Emma is considered 'at term' and we go off of that for developemental milestones. So at 17weeks actual she will finally be 1 day adjusted this Wednesday!! She is still working on taking all of her food my breast or bottle. I am going to spend tomorrow with my little girl! May 7, 2012 at 4:46pm

6lbs 8.5oz tonight! She nursed well, and then we snuggled for a while. She holds her head up pretty well and kept looking at me. She is such a smart little lady! She didn't want anything to do with the fortified milk I tried to give her because she was still rooting a little. May 7, 2012 at 11:40pm



Wow, it is a beautiful morning! The sun is shining! Heavenly Father is reminding me that everything is going to be alright!!! Happy Due Date Emma!!! I miss you Oliver, I wish that my pregnancy had gotten closer to this day so that you could be here with us to celebrate!!! I am so glad that I am able to celebrate and not only have the sorrow that could consume me! May 8, 2012 at 6:37am

Spending time snuggling my baby girl!
Princess Emma doesn't like the stuff they are adding into her milk, so we are going to try something new! I am hoping she like it! If she starts eating all of her food then we can go home!!!! May 8, 2012 at 3:20pm

She ate much better from a bottle for me at. 4:30 so hopefully that will continue and we can soon be homeward bound! May 8, 2012 at 5:30pm

Emma just ate her whole feed amount!!!! And she gained 20g! May 8, 2012 at 9:52pm

Due to Emma's slightly elevated blood pressure the plan is when she is eating all of her food to send her home on O2, until the Blood pressure comes back down. She will be seeing a cardiologist, nephrologist and and ENT along with developmental therapists and her pediatrician! So much for life getting back to normal when she comes home! Not complaining, just stating fact! May 9, 2012 at 3:54pm   

Emma's little neighbor is going home tomorrow, he was next to her in room 3 and recently in intermediate. I am happy they get to take him home at last! Hard to watch another baby go home who was born so long after Emma, but I know it will be my turn soon! Emma is 6lbs 9.3oz tonight! She was awake and making noise when I arrived! She nursed for 35mins. I wish that she didn't need the extra calories so I could breastfeed all of the time! May 9, 2012 at 10:12pm

   Beautiful baby!
Dr. I called to give me an update basically the same stuff, I asked about letting Emma eat more on her own schedule. He was hesitant until I reminded him that she nurses well. He then said why don't we plan on having you room in and see how she does for you!? I am so excited! Adam and I are going to be trained on the home oxygen and home apnea monitor tomorrow afternoon, then I will be spending some quality time convincing my daughter that food is important some time this weekend!! I am nervous and freaking out a little! Ok, A LOT! May 10, 2012 at 5:18pm 

I gave Emma a bath tonight, there is a special contoured sink and warming bed with oxygen available, makes it easy for me to do that all by myself! She nursed really well but was still rooting, then took 20mL by bottle! She was still awake when I left. I hate leaving her when she is awake! She is 6lbs 10oz 3030g!!! That is more than 5 times her birth weight!!! May 10, 2012 at 10:37pm

I am feeling very unsettled right now...ins/medicaid issues and well that is just the tip! May 11, 2012 at 11:40am
Hopefully crisis is averted!! When in doubt call the social worker! Everyone took care of everything and I didn't have to sit on hold for hours!!! I got a call from the home apnea and O2 company, they said that the supplies they were droppimg off today at the hospital would be $1000 my share. I reminded her about medicaid and was told that Emma isn't coming up eligible!?!? All fixed, but wow, I was stressed!!! May 11, 2012 at 2:08pm

   
 
  Look at that no feeding tube, she pulled it out!
Grr.. just called to check on Emma and they nurse put her feeding tube back in. Emma only took 50mL of her 80. But she was up 15 grams and just sleeping away. I spent most of the day with her today! I went up for her care at 12:30, she was pretty sleepy, but I got her to eat 10mL from a bottle with her calcium in it, then she nursed great! I held her for a long time then tucked her into bed. I sat in the rocking chair by her bed and the next thing I knew the nurse was waking me up to let me know that the oxygen and apnea monitor lady was there. Adam and I were trained on her monitors and the oxygen tank. Then we practiced on Emma. Then I stayed for her 4:30 care. I got her to take 71mL of her 80mL bottle. She is getting better! I am excited to room in with her tomorrow night and possibly Sunday night too! Pray that she eats well and gains weight, oh and doesn't have any bad spells! Then maybe, just maybe I will be able to bring my baby home soon! May 11, 2012 at 10:41pm

I am pumping after Adam's and my first night with our daughter, mostly to ourselves! When we arrived at 8 Emma was mad! She hadn't taken her full feed amount at 4:30 and she was sure that was my fault! She nursed for 20 mins, then took her vitamins out of a bottle and started rooting again! We gave her 20mL more and she took all of that too! Then when we were getting settled in our room she demanded 20mLs more! She slept great until 2:30 and ate her whole bottle. Then nursed for 15mins at 6:30 this morning! With all of the monitors and oxygen when she does come home it is kind of like bringing the hospital home with us. May 13, 2012 at 7:35am
 
On this Mother's Day I am reflecting on what it means to be a mother. All women have the inate ability to be mothers, even if they are never able to have children of their own. Aunties and friends are just as important in the loving and raising of children! I love how in church all women 18 and up are honored on Mother's day! Sad that I am missing church today, but happy I am spending the day with Emma! May 13, 2012 at 9:26pm

3095g tonight lastnight she was 3055g so she gained even though she hasn't eaten the optimal amount they want her to! Tomorrow she will get a repeat echo to see if the enlarged ventricles have changed any. And hopefully the cardiologist will tell us his theories on her high blood pressure. May 13, 2012 at 10:35pm

    
Sucks to be leaving the hospital without my baby, again, but at least we got to spend the weekend together! She is sooo close to being ready! May 14, 2012 at 7:07am
They haven't kicked me out yet, I am hoping to spend most of today with Emma too! Dr. I is going to consult with the cardiologist after Emma's echo today, hoping the news is good! May 14, 2012 at 11:38am

I get to spend the night with my baby again tonight! It was a great day today! We haven't heard from the cardiologist yet. But no news is good news at this point. Tomorrow we should get cleared on her eyes. May 14, 2012 at 11:57pm

Emma is doing her car seat test, then has an eye exam at 3. As long as the opthamologist doesn't find anything alarming I get to TAKE MY BABY HOME!!!!!! I have packed up all of her things, they had better not find a way to keep her!!!! May 15, 2012 at 12:27pm
  Car seat test


As we drive away from the hospital I feel like a covert operative: The eagle has flown, we are on the move! May 15, 2012 at 5:15pm
HOME!!!! May 15, 2012 at 5:36pm

Emma born at 23weeks has now come home with her family! Just one week past her due date!!! 18 weeks old! 125 days in the NICU! From 1lb 3oz to 6lbs 14oz!! Her siblings are smitten! Connor especially!  May 15, 2012 at  6:51pm
 
Giant oxygen tank-check,
Apnea monitor-check
Pulse oximeter-check
Portable oxygen tanks-check
We brought the hospital home with us! But we are finally all under the same roof! Emma seems to enjoy all of the attention May 15, 2012 at 8:00pm